'We're all on the same team': A qualitative studyPerspectives on the future of artificial pancreas systems by adults in Australia with type 1 diabetes using open-source technologies
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'We're all on the same team' : A qualitative studyPerspectives on the future of artificial pancreas systems by adults in Australia with type 1 diabetes using open-source technologies. / Schipp, Jasmine; Skinner, Timothy C.; Holloway, Edith; Scibilia, Renza; Langstrup, Henriette; Speight, Jane; Hendrieckx, Christel.
I: Diabetic Medicine, Bind 39, Nr. 5, 14708, 2022.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - 'We're all on the same team'
T2 - A qualitative studyPerspectives on the future of artificial pancreas systems by adults in Australia with type 1 diabetes using open-source technologies
AU - Schipp, Jasmine
AU - Skinner, Timothy C.
AU - Holloway, Edith
AU - Scibilia, Renza
AU - Langstrup, Henriette
AU - Speight, Jane
AU - Hendrieckx, Christel
PY - 2022
Y1 - 2022
N2 - Aims An emerging group of people with type 1 diabetes are not waiting for commercial solutions, choosing to manage their condition with open-source artificial pancreas systems (APS). Our aim was to explore their perspectives on the future of APS. Methods Semi-structured telephone interviews were conducted (in Australia, October 2018 to January 2019) with 23 adults with type 1 diabetes currently using open-source APS. Interviews were recorded, transcribed and analysed thematically. Results Participants described five key features of open-source APS they value: compatibility, user-led design, customisability, ability to evolve faster and community-driven. They attributed the success of the open-source APS movement to benefits they derive from these features: choice, solutions that meet their needs, ownership, staying one step ahead and real-time support. They expressed hope that future commercial products and healthcare would benefit from their learnings and from collaboration with the open-source APS community. Conclusions Participants believed that there will always be a place for the open-source community. It will continue to build on and advance commercial products, respond to user needs, offering a higher degree of control and customisation than afforded by commercial products and generating optimism for the future. Participants desired that future commercial diabetes technologies would be inspired by the open-source community and developed collaboratively with people with diabetes.
AB - Aims An emerging group of people with type 1 diabetes are not waiting for commercial solutions, choosing to manage their condition with open-source artificial pancreas systems (APS). Our aim was to explore their perspectives on the future of APS. Methods Semi-structured telephone interviews were conducted (in Australia, October 2018 to January 2019) with 23 adults with type 1 diabetes currently using open-source APS. Interviews were recorded, transcribed and analysed thematically. Results Participants described five key features of open-source APS they value: compatibility, user-led design, customisability, ability to evolve faster and community-driven. They attributed the success of the open-source APS movement to benefits they derive from these features: choice, solutions that meet their needs, ownership, staying one step ahead and real-time support. They expressed hope that future commercial products and healthcare would benefit from their learnings and from collaboration with the open-source APS community. Conclusions Participants believed that there will always be a place for the open-source community. It will continue to build on and advance commercial products, respond to user needs, offering a higher degree of control and customisation than afforded by commercial products and generating optimism for the future. Participants desired that future commercial diabetes technologies would be inspired by the open-source community and developed collaboratively with people with diabetes.
KW - automated insulin delivery system
KW - DIYAPS
KW - hybrid closed-loop device
KW - open-source artificial pancreas system (APS)
KW - psychosocial
KW - technology
KW - type 1 diabetes
U2 - 10.1111/dme.14708
DO - 10.1111/dme.14708
M3 - Journal article
C2 - 34599617
VL - 39
JO - Diabetic Medicine Online
JF - Diabetic Medicine Online
SN - 1464-5491
IS - 5
M1 - 14708
ER -
ID: 281801437