Strategies on personalized medicine and the power of the imagined public
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Strategies on personalized medicine and the power of the imagined public. / Groth Jensen, Lotte; Svendsen, Mette N.; Snell, Karoliina.
I: New Genetics and Society, Bind 42, Nr. 1, e2260939, 2023.Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt
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TY - JOUR
T1 - Strategies on personalized medicine and the power of the imagined public
AU - Groth Jensen, Lotte
AU - Svendsen, Mette N.
AU - Snell, Karoliina
N1 - Publisher Copyright: © 2023 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
PY - 2023
Y1 - 2023
N2 - Personalized medicine has become a central focus of health and innovation policies in many countries. It is a complex policy field which, in the pursuit of both health and wealth, brings together technology, new data use, and medical care. The aim of this paper is to analyze how the notion of personalized medicine has evolved, and what publics are implied in the political mobilization of the concept. We answer these questions based on a document analysis of Danish strategy papers in the period 2014–2021 and expert interviews. We identify different strategy actors driving the process, shifts in topics during the strategy process, as well as different imaginaries of the public. We argue that each group of strategy actors act with a particular public in mind and that these influence how personalized medicine is envisioned. If the relationship between strategy development and the imagined publics remains unknown, it can pose a democratic problem.
AB - Personalized medicine has become a central focus of health and innovation policies in many countries. It is a complex policy field which, in the pursuit of both health and wealth, brings together technology, new data use, and medical care. The aim of this paper is to analyze how the notion of personalized medicine has evolved, and what publics are implied in the political mobilization of the concept. We answer these questions based on a document analysis of Danish strategy papers in the period 2014–2021 and expert interviews. We identify different strategy actors driving the process, shifts in topics during the strategy process, as well as different imaginaries of the public. We argue that each group of strategy actors act with a particular public in mind and that these influence how personalized medicine is envisioned. If the relationship between strategy development and the imagined publics remains unknown, it can pose a democratic problem.
KW - data collection
KW - document analyze
KW - health policy
KW - imagined public
KW - personalized medicine
KW - public trust
KW - strategy development
KW - welfare state
U2 - 10.1080/14636778.2023.2260939
DO - 10.1080/14636778.2023.2260939
M3 - Journal article
AN - SCOPUS:85172346941
VL - 42
JO - New Genetics and Society
JF - New Genetics and Society
SN - 1463-6778
IS - 1
M1 - e2260939
ER -
ID: 369461957