Advance care planning-family carer psychological distress and involvement in decision making: the ACTION trial

Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt

Standard

Advance care planning-family carer psychological distress and involvement in decision making : the ACTION trial. / Vandenbogaerde, Isabel; De Vleminck, Aline; Cohen, Joachim; Verkissen, Mariette Nadine; Lapeire, Lore; Ingravallo, Francesca; Payne, Sheila; Wilcock, Andrew; Seymour, Jane; Kars, Marijke; Gronvold, Mogens; Lunder, Urska; Rietjens, Judith; van der Heide, Agnes; Deliens, Luc.

I: BMJ Supportive & Palliative Care, Bind 13, Nr. e3, 2023.

Publikation: Bidrag til tidsskrift › Tidsskriftartikel › Forskning › fagfællebedømt

Harvard

Vandenbogaerde, I, De Vleminck, A, Cohen, J, Verkissen, MN, Lapeire, L, Ingravallo, F, Payne, S, Wilcock, A, Seymour, J, Kars, M, Gronvold, M, Lunder, U, Rietjens, J, van der Heide, A & Deliens, L 2023, 'Advance care planning-family carer psychological distress and involvement in decision making: the ACTION trial', BMJ Supportive & Palliative Care, bind 13, nr. e3. https://doi.org/10.1136/bmjspcare-2020-002744

APA

Vandenbogaerde, I., De Vleminck, A., Cohen, J., Verkissen, M. N., Lapeire, L., Ingravallo, F., Payne, S., Wilcock, A., Seymour, J., Kars, M., Gronvold, M., Lunder, U., Rietjens, J., van der Heide, A., & Deliens, L. (2023). Advance care planning-family carer psychological distress and involvement in decision making: the ACTION trial. BMJ Supportive & Palliative Care, 13(e3). https://doi.org/10.1136/bmjspcare-2020-002744

Vancouver

Vandenbogaerde I, De Vleminck A, Cohen J, Verkissen MN, Lapeire L, Ingravallo F o.a. Advance care planning-family carer psychological distress and involvement in decision making: the ACTION trial. BMJ Supportive & Palliative Care. 2023;13(e3). https://doi.org/10.1136/bmjspcare-2020-002744

Author

Vandenbogaerde, Isabel ; De Vleminck, Aline ; Cohen, Joachim ; Verkissen, Mariette Nadine ; Lapeire, Lore ; Ingravallo, Francesca ; Payne, Sheila ; Wilcock, Andrew ; Seymour, Jane ; Kars, Marijke ; Gronvold, Mogens ; Lunder, Urska ; Rietjens, Judith ; van der Heide, Agnes ; Deliens, Luc. / Advance care planning-family carer psychological distress and involvement in decision making : the ACTION trial. I: BMJ Supportive & Palliative Care. 2023 ; Bind 13, Nr. e3.

Bibtex

@article{3320f61f22084a7393dd79eab7dd0cf7,
title = "Advance care planning-family carer psychological distress and involvement in decision making: the ACTION trial",
abstract = "Objectives Facilitated advance care planning (ACP) helps family carers' to be aware of patient preferences. It can improve family carers' involvement in decision making and their overall experiences at the end of life, as well as, reduce psychological stress. We investigated the effects of the ACTION Respecting Choices (RC) ACP intervention on the family carers' involvement in decision making in the last 3 months of the patients' life and on the family carers' psychological distress after 3 months of bereavement.Methods Over six European countries, a sample of 162 bereaved family carers returned a bereavement questionnaire. Involvement in decision making was measured with a single item of the Views of Informal Carers-Evaluation of Services Short Form questionnaire. Psychological distress was measured with the Impact of Event Scale (IES).Results No significant effect was found on family carers involvement in decision making in the last 3 months of the patients' life (95% CI 0.449 to 4.097). However, the probability of involvement in decision making was slightly higher in the intervention arm of the study (89.6% vs 86.7%; OR=1.357). Overall, no statistical difference was found between intervention and control group regarding the IES (M=34.1 (1.7) vs 31.8 (1.5); (95% CI -2.2 to 6.8)).Conclusion The ACTION RC ACP intervention showed no significant effect on family carers' involvement in decision making or on subsequent psychological distress. More research is needed about (1) how family carers can be actively involved in ACP-conversations and (2) how to prepare family carers on their role in decision making.",
keywords = "end of life care, bereavement, cancer, communication, ASSOCIATION, IMPACT",
author = "Isabel Vandenbogaerde and {De Vleminck}, Aline and Joachim Cohen and Verkissen, {Mariette Nadine} and Lore Lapeire and Francesca Ingravallo and Sheila Payne and Andrew Wilcock and Jane Seymour and Marijke Kars and Mogens Gronvold and Urska Lunder and Judith Rietjens and {van der Heide}, Agnes and Luc Deliens",
year = "2023",
doi = "10.1136/bmjspcare-2020-002744",
language = "English",
volume = "13",
journal = "BMJ Supportive & Palliative Care",
issn = "2045-435X",
publisher = "BMJ Publishing Group",
number = "e3",

}

RIS

TY - JOUR

T1 - Advance care planning-family carer psychological distress and involvement in decision making

T2 - the ACTION trial

AU - Vandenbogaerde, Isabel

AU - De Vleminck, Aline

AU - Cohen, Joachim

AU - Verkissen, Mariette Nadine

AU - Lapeire, Lore

AU - Ingravallo, Francesca

AU - Payne, Sheila

AU - Wilcock, Andrew

AU - Seymour, Jane

AU - Kars, Marijke

AU - Gronvold, Mogens

AU - Lunder, Urska

AU - Rietjens, Judith

AU - van der Heide, Agnes

AU - Deliens, Luc

PY - 2023

Y1 - 2023

N2 - Objectives Facilitated advance care planning (ACP) helps family carers' to be aware of patient preferences. It can improve family carers' involvement in decision making and their overall experiences at the end of life, as well as, reduce psychological stress. We investigated the effects of the ACTION Respecting Choices (RC) ACP intervention on the family carers' involvement in decision making in the last 3 months of the patients' life and on the family carers' psychological distress after 3 months of bereavement.Methods Over six European countries, a sample of 162 bereaved family carers returned a bereavement questionnaire. Involvement in decision making was measured with a single item of the Views of Informal Carers-Evaluation of Services Short Form questionnaire. Psychological distress was measured with the Impact of Event Scale (IES).Results No significant effect was found on family carers involvement in decision making in the last 3 months of the patients' life (95% CI 0.449 to 4.097). However, the probability of involvement in decision making was slightly higher in the intervention arm of the study (89.6% vs 86.7%; OR=1.357). Overall, no statistical difference was found between intervention and control group regarding the IES (M=34.1 (1.7) vs 31.8 (1.5); (95% CI -2.2 to 6.8)).Conclusion The ACTION RC ACP intervention showed no significant effect on family carers' involvement in decision making or on subsequent psychological distress. More research is needed about (1) how family carers can be actively involved in ACP-conversations and (2) how to prepare family carers on their role in decision making.

AB - Objectives Facilitated advance care planning (ACP) helps family carers' to be aware of patient preferences. It can improve family carers' involvement in decision making and their overall experiences at the end of life, as well as, reduce psychological stress. We investigated the effects of the ACTION Respecting Choices (RC) ACP intervention on the family carers' involvement in decision making in the last 3 months of the patients' life and on the family carers' psychological distress after 3 months of bereavement.Methods Over six European countries, a sample of 162 bereaved family carers returned a bereavement questionnaire. Involvement in decision making was measured with a single item of the Views of Informal Carers-Evaluation of Services Short Form questionnaire. Psychological distress was measured with the Impact of Event Scale (IES).Results No significant effect was found on family carers involvement in decision making in the last 3 months of the patients' life (95% CI 0.449 to 4.097). However, the probability of involvement in decision making was slightly higher in the intervention arm of the study (89.6% vs 86.7%; OR=1.357). Overall, no statistical difference was found between intervention and control group regarding the IES (M=34.1 (1.7) vs 31.8 (1.5); (95% CI -2.2 to 6.8)).Conclusion The ACTION RC ACP intervention showed no significant effect on family carers' involvement in decision making or on subsequent psychological distress. More research is needed about (1) how family carers can be actively involved in ACP-conversations and (2) how to prepare family carers on their role in decision making.

KW - end of life care

KW - bereavement

KW - cancer

KW - communication

KW - ASSOCIATION

KW - IMPACT

U2 - 10.1136/bmjspcare-2020-002744

DO - 10.1136/bmjspcare-2020-002744

M3 - Journal article

C2 - 35177432

VL - 13

JO - BMJ Supportive & Palliative Care

JF - BMJ Supportive & Palliative Care

SN - 2045-435X

IS - e3

ER -

ID: 299389837